PDD-NOS and how it's changing our lives

Back in March we took Our 9yo to see a child psych. doctor to see about some of his behaviors. He's a good boy, he just does odd things. Some of which are Sensory Issues and some which aren't. So after an evaluation he now has a dx of PDD-NOS (pervasive developmental disorder-not otherwise specified) and SPD (sesory processing disorder) with possible ADHD (attention deficit hyperactivity disorder) tendencies. I'm convinced that the ADHD tendencies are more sensory issues then attention issues just because of the "how" of his lack of attention. He says things like, "What mom, I can't here you? The kitchen light is too loud." (Our only florescent light in the house). And his "hyper" is less when he has a sensory diet.

Some of the things that are his issues are Gross and Fine Motor Delays, Social Delays, Attention problems and Sensory Issues.

He was evaluated for Gross Motor Delays. His first scores were 4.5 months (with objects) and 5.3 months (with locomotion). He was in the 1st % so he qualified for PT. He just had his second evaluation last week. He has improved and is now in the 2nd %. This means he still will have therapy, just less. When he hits the 15th percentile he will no longer qualify.

He now has 14 core strength exercise (like balancing on an exercise ball) that he has to do daily and 6 skill building exercises (like dribbling a basketball) that he does weekly.

He's back in OT which is great. But we have to drive an hour to the closest therapist for a 1/2 hour therapy session. She seems to be a good fit for him. Yesterday he received a PECS (picture exchange communication system) folder which he is very excited about. The thing is... he doesn't have any verbal delay, but does have communication delays (lack of eye contact, not catching social ques, ect.) and some real issues with several step directions. We'll see how it works for him.

He will begin his stick kids exercises today. This is a program with his PECS that helps add in his sensory diet activities to his daily routine. We will do 12 different exercises or activities for the next two weeks and keep records on which ones work and which don't. We'll add new ones in the place of the ones which didn't work in a couple weeks.

In November ds will be going to a Neurologist to confirm his dx and hopefully help give us some direction into how we will proceed. So I guess that's it for now.